Minutes – July 6, 2017

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes
July 6, 2017

Opening

The monthly meeting of the Organ Transplant Recipients of SWFL Inc. was called to order at 11:40 a.m. on July 6, 2017 at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Shamie Kelly, President of the group.

Announcements

Anniversaries:

  • Mariann Jefferson-Heart/Liver/Bone Marrow 20 years! (7/20/97)
  • James Johnson-Kidney/Liver (7/17/10)
  • Frank Tutay-1st Kidney (7/79)
  • Kathleen O’Toole-Lung (7/16/09)
  • Madelyn Chrone-Heart (7/30/00)

Visitors:

Joanne- Caregiver for her husband who is on hemodialysis at Cape South T, Th, Sat which is why he is unable to attend.

Member Updates:

Jenniene Moran received her 3rd kidney in Baltimore, MD through a paired exchange. She was the 6th recipient in the chain and although she has been battling some infections, she is doing relatively well and the kidney is working.

Reports

The Secretary’s report was unavailable but all past months will be finished and posted to the website soon. The Treasurers report shows a previous balance of $1216.16 with contributions of $20.00 from the monthly 50/50, $20.00 from name tags, $11.00 from hat sales, and $84.00 from Pitch for Life resulting in $135.00 in deposits. $136.16 was paid to Shamie Kelly for last month’s meetings food leaving an ending balance of $1215.00 Donna Williamson has reports from the Fletcher Fund that will be discussed more in Old Business.

Old Business

There has been much discussion and some confusion surrounding the Fletcher Fund, its purpose, and what exactly its funds can be utilized for. Donna Williamson, Fletcher Fund board member, is here to discuss this following a recent meeting of the board which addressed some of these questions. First off, it is important to differentiate the purpose between the two groups; being the Fletcher Fund and the Organ Transplant Recipients of SWFL. The purpose of the OTRSWFL is to provide a place for the sharing of medical experiences among members, to provide public information and education on matters relating to organ transplantation and organ donation, and to provide “support” activities for transplant candidates, recipients, donors and families while the purpose of the Fletcher Fund is to provide financial support for members in need of assistance with medical expenses related to transplant.

Donna also provided the financial report for the Fletcher Fund showing a total net income from December 2016-May 2017 of $24,879.38 and a total balance of over $217,000. Also during the last Fletcher Fund board meeting a decision was made to raise the grant amount to $1500 annually per member. Next month there will be more discussion on the Fletcher Fund if need be as well as a final wrap-up for Night for Life 10 so that planning for Night for Life 11 can begin. The membership application is now available on the website for those wanting to refer new members.

New Business

Hats are now also available to represent the group. They are $11.00 and anyone interested can speak with Shamie Kelly regarding purchasing. LifeLink is making this month’s volunteer meeting a travel meeting to the tissue bank in Tampa. It is on 7/25 and begins at noon, information can be found on the volunteer portal of the LifeLink site if you are registered with them.

The MADD Dash 5k at Jet Blue Park will take place on 9/30 this year and this could be a wonderful opportunity to represent the group versus just LifeLink if members are interested in manning a table to provide information. Last year several members volunteered for LifeLink at the event and had a good response from some donor families who came up to share their stories.

We also have several opportunities for group fundraising and grants that are available through local businesses one of which we are already in the midst of planning. Jason’s Deli will give 15% of purchases made on the day of our choosing which Shamie is working on scheduling a date in September. Wal-Mart provides grants of anywhere from $200-2500 for local non-profit organizations and Shamie has already begun the application process on behalf of the group.

Donna Williamson brought to the floor that Chico’s also provides grants for educational purposes so this may be an option to help pay for group brochures as these are considered educational materials. In an effort to increase the social aspect of our group outside of monthly meetings, Janet and David Weinstein have so graciously offered to host a pool party/BBQ at their home on 7/30. Food will be provided just bring your swimsuits and a smile! Directions will be made available to those who RSVP via the email that will go out to group members.

Some ideas were discussed regarding the next Night for Life which included a 3-day limit on accepting auction items prior to the event and expediting checkout by using another machine and signage for a cash & check only line. Also, a date has been selected for Night for Life 11 which is April 2nd 2018. In addition, dates will be discussed next month for another comedy club fundraiser to benefit the group.

Adjournment

Meeting was adjourned at 1:48 pm by President Shamie Kelly. The next meeting will be at 11:30 am on August 3, 2017, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.

Minutes submitted by: Melissa Tuff, Secretary

Minutes – August 4, 2016

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes

August 4, 2016

Opening

The monthly meeting of the Organ Transplant Recipients of SWFL Inc. was called to order at 11:35 a.m. on August 4, 2016 at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Shamie Kelly, President of the group.

Announcements

• Anniversaries: Robin Furney-Kidney (8/5)
• Visitors: No visitors were present at this month’s meeting.
• Member Updates: Carolyn Moore is doing well she has just been too busy to attend the last few meetings.

Reports

The Secretary’s report was approved and meeting minutes are available to view on the website. The Treasurers report shows a previous balance of $936.05 with contributions of $44.00 from the monthly 50/50 and membership dues collected totaling $25.00 resulting in $69.00 in deposits. $59.95 was paid to Steve Williamson for last month’s meetings food and $43.00 was paid to Shamie Kelly for the organizations P.O. Box rental leaving an ending balance of $902.10 Donna Williamson reports that there were no contributions nor any payouts from the Fletcher Fund last month.

Old Business

Shamie Kelly, President of the group, wanted the group to know that we have had to refund the day of basketball with Shaquille O’Neal to the winning bidders from the Night for Life event. There have been complications with trying to schedule a day for it to take place so the group refunded the money to the buyer. We will still have the certificate so it may be used for a future fundraiser. Carlene Brennen proposed we hold a fundraiser at our Christmas party. She has been collecting some really neat holiday items and would like to hold a Chinese auction at the party which will be at no cost to the group because she is offering to provide all of the items to be put up for auction.

The items vary from gifts that can be given to others and items members may want for themselves. Donna Williamson made the motion to allow Carlene to proceed with her project with much gratitude from the group for her generosity. Jenniene Moran as well as David Weinstein seconded it and the group unanimously approved the motion. Carlene will provide a detailed proposal of the event and where she would like the funds designated to the Fletcher Fund or the group at next month’s meeting. This year Night for Life is celebrating a decade so Donna Williamson hopes the group all shares in her enthusiasm to make this year’s event even bigger and better than ever.

She would like to see the event focus on donors this year and have living donors and donor families as speakers so she is encouraging everyone in the group who has had a living donor transplant or those who are in touch with their deceased donor families to invite them to come to the event even if they do not wish to speak. Donna states that many of the people who attend typically know a recipient but many are still scared of donation so with focusing on donors they will be able to see for themselves that living donors still have normal lives after donating and they can meet families who chose to donate their loved ones organs which can put their minds at ease as well.

She feels that donors should not be paying for their ticket to the event and hopes that the recipient would cover that for them but if finances are an issue then contact Donna or someone else with the Fletcher Fund to discuss getting a grant to ensure the donors get in at no charge. All of the donors have been thanked for Night for Life and a big thanks to everyone who helped out with the event, the group as a whole feels that it was a great success. There will be a wrap-up meeting held immediately following today’s meeting. Give Life Day was on July 16th at the Edison Mall. While Be the Match bone marrow registry did not show up, Lee Memorial was there with the blood mobile, representatives from our support group were there as well as volunteers from LifeLink to register organ donors. 3 people registered at the table, 6 people donated blood, and we spoke to approximately 70 people regarding organ and tissue donation. Edison Mall was thrilled with our participation and Shamie is already discussing with their PR representative another event to be held in April during Donate Life month which will be hosted by us rather than LifeLink. They are looking to make this more of a “health fair” type of event and it will be held near Macy’s with a stage for recipients and donors to speak. Ideally she would like to find some sponsors along with One Blood and maybe a doctor’s office to send a couple of people out to represent them.

We will discuss the event further at the November meeting when it will be about time to begin planning for it. There are new business cards and flyers for the group, please make sure to take some before you leave the meeting today to distribute them. Staples made a mistake on the order by so printing them off center so they were free. Shamie also got a new banner a poster which the poster was also printed wrong so it was free as well. We need more pamphlets for the group and Shamie asked for a member of the group to volunteer to help with the design. Shamie talked to Bob Lucas about adding Café Press to our group’s website and he said that it would not be a problem to add the link on our page which will act as another source of revenue for the group. There are all kinds of items that can be ordered through Café Press so this could be a really great way to not only advertise the group but to also raise more money for our monthly expenses. An email with the color selections for the regular group shirts will be sent out and shirts must be paid for before they can be ordered. Shamie is also looking into some other companies to order shirts from in the future to try and find a more competitive rate. The expected cost is about $10-11 per shirt and they will be short sleeved. Be prepared to pay for your shirt at the September meeting, cash only please.

New Business

Shamie Kelly, President of the group, spoke with a member of the Gulf Coast Transplant Center who informed her that they now have their second transplant surgeon and they expect the second nephrologist to be there by mid-September and there is an interim director from a consulting firm in place. The new social worker will start in early September about the same time as the nephrologist. With UNOS overseeing the process and everything looking like it is finally on track they expect to re-open the deceased transplant program in early October. Next month the group plans to hold its first night meeting. The transplant center is trying to help and they are possibly going to let us hold the meeting in the community room at Gulf Coast. The person that needs to approve this will be out of the office until Monday the 8th so the transplant center will get back to Shamie to confirm sometime next week. It will still be held on the first Thursday of the month with the anticipated time to be from 5:30-7:30 p.m. The transplant center is very interested in working with us and would really like to send a team to represent them at our next meeting so that they can give us any updates on the program and give members a chance to ask questions. As soon as Shamie hears who will be coming from the transplant team she will send out an email to the group with the update. Although they will continue to only do kidney transplants at Gulf Coast it is still good to have a transplant team directly working with the group. A second place to hold the meeting was proposed by Carlene Brennen which was to hold the meeting in the cafeteria if the community room is not available for our next meeting. Donna Williamson seconded the motion so it was decided that if the meeting could not be held at the community room everyone would meet in the cafeteria. Everyone please remember to silence your cell phones before entering the room for the meeting. It is understood that they need to be on, especially for those waiting for a transplant, but just be mindful to keep them on vibrate or silent mode when in the meetings. All members please make sure to register on the website. That is how you can ensure that you receive all of the updates and announcements that are sent out via email. Paul Lewis also mentioned Comedy for a Cause again as a way for the group to host a fundraiser. There is a Financial Workshop for Transplant Patients hosted by the LifeLink Legacy Fund being held at Tampa General on Friday, August 12th. Flyers have been handed out to members detailing the event and RSVP’s are required by tomorrow August 5th. This is for pre and post transplant patients and lunch will be provided. They are going to try to stream it live and have it on their Facebook page but it is unknown if that will definitely happen. Paul Lewis gathered information on the Comedy for a Cause fundraising option that has been brought up at several past meetings. There is an initial investment of $600 which basically rents the place for the evening and we are responsible for selling tickets at cost of $15 each. 100% of the ticket costs come back to the group which means at least 40 tickets need to be sold in order to break even. Paul is unsure of the capacity at this time but will find out for the next meeting. Shamie thinks this could be a possibility and we could look into getting a sponsor such as Lee Memorial to cover the $600 since they did not make their usual donation to the Night for Life event and they could also use the event to gather good publicity for the reopening of their transplant center. With Lee Memorial sponsoring the event we also could expand our ticket sales to their employees which would bring a larger crowd than just our group alone. The concern over the type of talent they will have available was brought up and Shamie said that would be something to be looked into and discussed at next month’s meeting.

Adjournment

Meeting was adjourned at 1:30 pm by President Shamie Kelly. The next meeting will be at 11:30 am on September 1, 2016, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.
Minutes submitted by: Melissa Tuff, Secretary

Minutes – July 7, 2016

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes
July 7, 2016

Opening

The monthly meeting of the Organ Transplant Recipients of SWFL Inc. was called to order at 11:45 a.m. on July 7, 2016 at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Shamie Kelly, President of the group.

Announcements
•    Anniversaries: Frank Tutay-1st Kidney (7/79), Paul Lewis-Pancreas (7/1/12), Kathleen O’Toole-Lung (7/16/09), James E. Johnson-Kidney (7/17/10), Mariann Jefferson-Liver & Bone Marrow (7/20/97), Madelyn Chrone-Heart (7/30/00)

•    Visitors: Steve Cavaleri, who is in the process of working with the V.A. to get listed through Tampa General for a liver. George Fry a heart transplant recipient post massive heart attack. His transplant took place at Tampa General on 6/2/05 and he recently had his first annual transplant follow up in which his biopsy showed absolutely no signs of rejection. Rhonda who is originally from Chicago is with us for the first time today as well. She moved here to get on the list for a kidney and she has been listed at Tampa General for the last 2 years. Two weeks ago she got a phone call for a match but it was a no-go. She is hopeful that she will get another call very soon. Jean & Alissa Watlington are here for their first time, Alissa found out about the group after Googling support groups for transplant patients in the area on behalf of her mother Jean who is a liver recipient. Jean received her liver at Tampa General on May 13th 2015 so she just celebrated her 1 year transplantiversary!

•    Member Updates: Secretary of the group Melissa Tuff shared the good news that she was just approved for the waitlist at Tampa General for her second kidney. Member Donna Williamson reported that John Hall has suffered some setbacks in his recovery unrelated to his transplant. John had a hip replacement and has been having problems with it so he is being treated up north near their summer home. Shamie Kelly reminded the members of the group that if they have updates on members that are not able to attend to share this with the group so that we can send them a card wishing them a speedy recovery. At this time existing members went around the room to do a brief introduction since there are so many visitors and potential new members in attendance.

Reports

The Secretary’s report was approved and meeting minutes are available to view on the website. The Treasurers report shows a previous balance of $566.75 with contributions of $53.00 from the monthly 50/50, membership dues collected totaling $10.00, $72.00 from the Pitch for Life Baseball Fundraiser, and $300.00 from the Fletcher Fund to cover 50% of the website costs resulting in $435.00 in deposits. $65.70 was paid to Shamie Kelly for last month’s meetings food leaving an ending balance of $936.05 Donna Williamson does not have the latest financial report for the Fletcher Fund but announced that they paid out a grant for $1000.00 to a member in need last month.

New Business

Shamie Kelly, President of the group, met with members of the Gulf Coast Transplant Center to discuss the restructuring of the transplant program. Barbara Miller has resigned/retired from the position of Renal Transplant System Director for Lee Memorial Health System and the social worker Janet Milan who visited the group a few months ago has been replaced due to UNOS requiring a licensed social worker in that position. She has been relocated within the Lee Memorial Health System and it is unknown if she will return to the transplant team. Janet also held a position on the Fletcher Fund board so at this time it is not known if she will continue to serve on the board. In addition, the transplant nephrologist who was scheduled to join the team has experienced some family issues that are prevented him from taking the position so now another nephrologist is coming on board. Shamie would like to remind members not to bombard the transplant center with emails or visits during this time of restructuring. They have assured her they will give us more information by attending or holding a meeting for the group closer to the center reopening, possibly around Christmas.

Shamie also met with Dr. Delans from Associates in Nephrology who were previously affiliated with Gulf Coast Transplant Center as they are negotiating with Tampa General to provide follow-up care to their transplant patients. This will also go for Surgical Specialists who were previously involved with the Gulf Coast Transplant Center. Further clarification should be available next month as Shamie will be meeting with them again today. Give Life Day is Saturday July 16th at Edison Mall from 2-5pm. LifeLink will have a table set up to register organ donors, Be The Match Bone Marrow Registry will be there recruiting bone marrow donors, and One Blood or Lee Memorial will be there to accept blood donations and possibly do blood pressure checks.

Shamie proposed the idea and LifeLink sort of ran with it but she would like our group to have a table there since most of the people volunteering for LifeLink are group members as well but it is also a great opportunity to get the word out about the support group. A sign-up sheet will be passed around for those interested in volunteering for the event. Apple has released a new version of their operating system that allows people to register as an organ donor at the push of a button. Make sure to share this will all those you know who use iPhones.

Old Business

Jenniene Moran was not able to attend today so a Night for Life wrap up meeting is scheduled for immediately following our monthly August meeting. Even if you weren’t involved this year feel free to attend so that we can start brainstorming for our Night for Life X! If you were personally involved in gathering donations please be sure to thank the person or organization that contributed by email, phone, a short note, or even a visit. Doing so will help to ensure we can count on their support for future events.

The formal Thank You that was supposed to have been printed in the News Press was never printed although it was submitted four different times so we will continue to thank our donors via the website and Facebook. Name tags are being ordered and will hopefully be in before the Give Life Day event, they are expected to be $8.00 each. Shamie is continuing to work with the management of Sonny’s BBQ to coordinate our Random Acts of BBQ date. She expects this to be late August or early September and the group prefers to do a weekend versus a weekday but we will also work with whatever they are willing to give us.

Quarterly night meetings have been proposed and September is the tentative start date for this to occur pending further discussion at our next meeting. Donna Williamson made the motion to add Café Press to the OrganSupport.com website as a way to raise more money for the group. Café Press offers shirts, coffee mugs, and various other customizable items for sale with a portion of the proceeds coming back to the group it benefits. Mariann Jefferson seconded the motion and a group vote was also taken in which no one opposed the motion. Paul Lewis also mentioned Comedy for a Cause again as a way for the group to host a fundraiser. He will gather information and it can be discussed more in depth at the next meeting.

Adjournment

Meeting was adjourned at 1:30 pm by President Shamie Kelly. The next meeting will be at 11:30 am on August 4, 2016, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.
Minutes submitted by:    Melissa Tuff, Secretary

Minutes – June 2, 2016

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes
June 2, 2016

Opening

The monthly meeting of the Organ Transplant Recipients of SWFL Inc.was called to order at 11:48 a.m. on June 2, 2016 at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Shamie Kelly, President of the group.

Announcements

•    Anniversaries: Robin Furney-Liver (6/22/07), Kay Arrowood-Molle-Liver (6/19/07), Vern Jackson-Lung (6/20/07), Tom Stuart-Liver (6/24/10), Dorothy Weaver-Kidney (6/26/95), George Kearns-Heart (6/27/96), Donna Williamson-2nd Kidney (6/18/15)

•    Member Updates: Jenniene Moran is unable to attend today due to having staples removed from her fistula surgery. She is recovering well. David Weinstein had been having some fluctuations in his creatinine which he reports are now resolved. John Hall is improving from his hip popping out of joint.

•    Visitors: Rod Kerfoot, heart recipient (3/14/16) is here with his wife and caregiver Leah. His transplant took place at Tampa General and he is recovering well. David Clark is here and he is pre-kidney transplant on dialysis. His wife, caregiver, and potential donor Marleen is accompanying him to the meeting today.

Reports

The Secretary’s report was approved and meeting minutes are available to view on the website. The Treasurers report shows a previous balance of $590.15 with contributions of $73.00 from the monthly 50/50, and $15.00 in membership dues collected resulting in $88.00 in deposits. $111.40 was paid to Shamie Kelly for last month’s meetings food leaving an ending balance of $566.75

Donna reports that the Fletcher Fund has $191,171.87 available.

The board decided to cover half of the website costs returning $300 to the group.

Janet Milan, the new transplant social worker from Lee Memorial was voted in as the new Fletcher Fund Secretary and Carlene Brennen as a member of the board.

There have been 3 grant requests received, 2 of which have been approved and paid out and 1 is still pending board approval.

Donna also mentioned that Café Press which offers t-shirts and various other personalized items for sale could be added to our website in order to generate additional funds for the group.

The Night for Life IX wrap-up meeting will be postponed once again as all committee members are not present at this time.

Old Business

The official Night for Life IX press release is scheduled to go out on Monday June 6th in the Fort Myers News-Press. Shamie asks that everyone please remember to thank all of our sponsors if you have not already done so. Sonny’s BBQ has selected our group for their event “Random Acts of BBQ” in which a party will be held at their Fort Myers location in our groups honor. They will provide food, beverages, and a cake to celebrate our group and its impact on the community. The event is expected to take place in late July or August based on the availability of the restaurant, more details to follow at the next meeting.

Please make sure that you are signed up on the new website to ensure that you are getting group emails! There will be important information regarding events, t-shirt and name tag ordering, and volunteer opportunities that you may miss out on if you are not registered.

The discussion on whether or not to have lunch catered is still ongoing. The budget for lunch typically comes from the 50/50 funds so try and remember to purchase tickets during the meeting to ensure that we can continue to provide lunch for all members without depleting the group funds. Carlene Brennan spoke with Janet Milan the transplant social worker to see if Lee Memorial would at least cover our lunch costs since they are no longer providing the space we used to hold our meetings at in the hospital, she is still waiting for a response. Donna Williamson made the motion that members bring their own beverages to the meetings in an effort to save costs and lessen the amount of items having to be brought in by whoever is picking up the food. Joe Ritter seconded the motion. Carlene Brennan offered to bring cups for members to utilize the water fountain for beverages. Donna Williamson also made the motion to put out a basket or “tip cup” for members to contribute toward monthly lunch provisions as well. Melissa Tuff seconded the motion. Steve Williamson offered to pick up the food for the next two months and Carlene Brennan seconded the motion.

The group wishes to acknowledge and thank Cathy and Vicki for bringing the food for today’s meeting. Name tags will be available to order for $10 and a sheet is being passed around for those who are interested to sign up. T-shirt color options were also passed around and the cost is expected to be about $13 each.

New Business

The group would like to see more professional speakers visiting so Mariann Jefferson mentioned Dr. Rosen from Snead Eye Care would be interested in speaking at our meeting and Donna Williamson mentioned Dr. Kim (Plastic Surgeon) may be a good option as well. It was also proposed by several members that we try and find a dermatologist, a pharmacist, and perhaps a nutritionist/dietician to come and address pre and post transplant concerns. David Weinstein won $26.50 in this month’s 50/50 and elected to donate his winnings back to the group.

Holding a night meeting quarterly was discussed and will be researched further as to accommodate those members who are not able to attend regularly due to work and/or dialysis schedules. Paul Lewis wanted to mention an event taking place at Hammond Stadium that is being held by his eye center. Please contact him for ticketing info. He also mentioned that another group he belongs to held an event called “Comedy for a Cause” and he proposes this be looked into as an option in order to generate more funds for the group.

The group is also looking into participating in more social activities such as an annual picnic as to allow members to get to know one another more in a social setting rather than just seeing each other at monthly meetings. The group consensus was that this will be a great idea and many members are eager to participate. David and Janet Weinstein will be traveling to Cleveland to take part in the Transplant Games of America. Janet will be participating in bowling, trivia, a 5k, and a 10k. President Shamie Kelly will be speaking about our group and organ donation at an
upcoming Kiwanis event.

Adjournment

Meeting was adjourned at 1:30 pm by President Shamie Kelly. The next meeting will be at 11:30 am on July 7, 2016, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.

Minutes submitted by:    Melissa Tuff, Secretary

 

Minutes – May 5, 2016

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes
May 5, 2016

Opening

The monthly meeting of the Organ Transplant Recipients of SWFL Inc.was called to order at 11:49 a.m. on May 5, 2016 at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Shamie Kelly, President of the group.

Announcements

•    Anniversaries: Chelsea Bley-Kidney (5/96), John Craig (passed last year)-Heart (5/1/93), Joseph Haug Jr.-Heart (5/2/97), Michael Janiver-Kidney (5/27/02), Greg Okon-Heart (5/14/07), Wayne Ormsby-Kidney (5/30/03), Norma Waughn-Liver (5/1/02), and David & Janet Weinstein are celebrating their 9th wedding anniversary this month!
•    Member Updates: Barbara Pratt is having surgery and John Hall’s hip popped out and he is currently undergoing care for that. Cards are being passed around for both of their speedy recoveries, everyone is encouraged to sign.
•    Visitors: Joe (caregiver) & Joyce (stage 3 kidney disease) Rudder (sp?), Cathy (kidney recipient) & Vicki (mom/caregiver)

Reports

The Secretary’s report was unavailable. The Treasurers report shows a previous balance of $1179.87 with contributions of $35.00 from the monthly 50/50, $40.00 in membership dues collected, and $70.00 in additional donations resulting in $145.00 in deposits. $134.72 was paid to Shamie Kelly for last month’s meetings food, and $600.00 to Lucas Marketing for the website leaving an ending balance of $590.15 The Fletcher Fund is in “great shape” per Donna Williamson but we do not have a full report at this time. Donna reports that as of March 9th the fund had $183,145.00 available.
Ticket sales from the Pitch for Life event raised approximately $80 for the group, membership dues should have been paid as of January 1st so if you have not paid yours, please see David Weinstein to take care of them. Everyone also please be sure to visit the new website and recreate your login so that we can keep you up to date on all events and news related to our group.

Old Business

A Night for Life IX press release is scheduled to go out next week formally thanking all of our sponsors. To those members who personally collected donations please be sure to thank your contributors! We will be having a formal Night for Life IX wrap-up meeting hopefully next month pending Jenniene Moran’s (event co-chair) return. Changes to the checkout procedure and suggestions on how to improve the event will be held for discussion until then.

Doug McGregor, an illustrator from the News-Press made a donation and has offered his services to design signage for next year’s Night for Life. The Pitch for Life event with the Fort Myers Miracle was a great success and the team pulled off the win at the very last inning. There was a lot of interaction with attendees and while most people were already registered organ donors the event was still considered a great success and we are looking at doing this annually.

Name tags are $8.00 each and will display our group name, your name, and your affiliation as a recipient, donor, caregiver, family member, etc. An email will be sent with an example once research can be done to find some that are not magnetic for members with pacemakers. Shirts will also be ordered soon for $13 each and more information on those will also be included in the same email as the name tags. Business cards for the group will be available at the next meeting, please take some and leave them at clinics, hospitals, doctor’s offices, and other support groups you may attend.

New Business

Janet Milan, the new transplant social worker from Lee Memorial was able to get away to introduce herself and briefly discuss the restructuring of the kidney transplant program at the hospital. They anticipate there being two transplant surgeons, and two nephrologists on staff who will be obligated to follow transplant patients for at least 3 years post-op. They expect to have a fully functioning transplant clinic when the changeover is complete.

Janet has previous experience in the kidney field as a social worker for Davita when she lived in New York. President Shamie Kelly proposed a tour or meeting for the group, or at least the members who can attend on one of their lighter workload days so that members of the group can become affiliated with the staff at the new transplant clinic. Janet says they have a projected reopening date for July and she will also be serving on the Fletcher Fund board. The two visitors to the group this month have both decided to share their stories with us for our monthly member share. Joyce Rudder (sp?) is in stage 3 kidney failure and is attending with her caregiver husband, Joe who both moved from Pittsburgh to Cape Coral in 2000. She is doing well at stage 3 and hopes to continue to maintain her level of health to prevent her kidney disease from progressing any further. Their friends purchased the Day of Basketball with Shaquille O’Neal for them at the Night for Life IX benefit which they are really looking forward to.

They plan to take the ball included in the package and have Mr. O’Neal autograph it then they would like to re-donate it back to the group for next year’s event. Joyce also mentions that she has experience in event and party planning and she looks forward to contributing to future fundraising and awareness events with the group. Cathy, who is also new to the group moved down to Florida from Kansas with her husband in August 2011 because she needed a kidney transplant and her mother moved down not long after to help as a caregiver. Her best friend Tracy donated her kidney 2 years ago via the paired exchange program which resulted in a 6 donor chain.

The first 3 months after transplant were rough for her but now she is doing well. Cathy is very excited to be a member of the group and very willing to help out with any events we may be hosting in the future. Steve Williamson proposes having the food catered versus dragging it in every month. Further research will be done to weigh the cost effectiveness and availability of agreeable restaurants who deliver in the area. Members are asked to bring in at least one menu from a restaurant or catering service in the area surrounding The Sanctuary.

If catering is found to be too expensive or an agreement on food cannot be reached it is then asked that other members offer to step up and volunteer to pick up lunch from Publix where we currently get it. Secretary Melissa Tuff seconded the notion. Steve Williamson also won the 50/50 drawing and donated his winning back for a total of $73 coming back to the group. The medicine table is available as always, please be sure to look for any medications you can use before leaving.

Adjournment

Meeting was adjourned at 1:26 pm by President Shamie Kelly. The next meeting will be at 11:30 am on June 2, 2016, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.
Minutes submitted by:    Melissa Tuff, Secretary

Minutes – April 7, 2016

Organ Transplant Recipients of SWFL Inc.
Meeting Minutes
April 7, 2016

Opening

The regular meeting of the Organ Transplant Recipients of SWFL Inc. was called to order at 11:30 a.m. on April 7, 2016 in The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers by Vice President Mariann Jefferson standing in for President Shamie Kelly who was absent today. This meeting will be shortened due to the extended Night for Life IX planning meeting to immediately follow.

Announcements

•    Anniversaries: Shamie Kelly-Kidney (4/3/15), Derrick Thompson-Liver (4/6/1997), Joseph Myers-Heart (4/9/1997), Cheryl Abraham-Kidney (4/15), and Frank Tutay-3rd Kidney (4/24)
•    Member Updates: Tim & Caroline Elkins will be returning to North Carolina, John Hall went back up north also. His Prograf has been dropped to 25% and all reports for his follow-up are good. He and Dee will be back in October.
•    Visitors: Leah joins us in support of her husband who recently received a heart in Tampa.
•    General: Night for Life planning meeting to follow immediately after conclusion of monthly meeting and another will be held on Saturday to prepare items for auction.

Reports

The Secretary’s report was approved. The Treasures report shows a previous balance of $1,174.65 with contributions of $54.00 from the monthly 50/50, and $45.00 in membership dues collected resulting in $99.00 in deposits. $93.78 was Shamie Kelly for the February meetings food expense leaving an ending balance of $1,179.87 There was no report available from the Fletcher Fund but there should be next month.
Old Business

Everyone please make sure you visit the new website! The updates make it much more user friendly and it is also mobile compatible so it works much better with your smartphone. The Ft. Myers Kidney Walk was a great success! Over 300 people walked and $42,000 was raised! Next year’s date is scheduled for March 12th so mark your calendars now and plan on joining us next year if you couldn’t make it to this one. Close to 20 people from our group including family, friends, and LifeLink participated in the event. Thank you to everyone who came out! The Pitch for Life event with the Ft. Myers Miracle is coming up on April 23rd, be sure to invite your friends, family, neighbors, and coworkers as a portion of the ticket sales purchased using our password (pitchforlife) will benefit our group! Jeff is not here to discuss group shirt purchasing further so that discussion will be delayed until next month.

New Business

Barbara Miller, Gulf Coast Medical Centers Transplant Department Director and Janet Milan, the new Social Worker were not able to attend this month’s meeting but hope to attend next month. Rick Keatley and Donna Willamson shared their transplant stories today. Rick went through quite a battle when his liver began to fail. He was in denial about his diagnosis until he went into acute kidney failure multiple times, wound up in a coma and was told by doctors that he was going to die. While admitted in the hospital again in late April, Rick finally got the call for a liver. He has been doing very well since. He wrote his donor family and initially did not hear back but then in January he received a card. He continues to write and they even plan to meet sometime in the near future. Donna’s story starts back in her early 20’s. When she was initially diagnosed she prayed to just be able to stay healthy and raise her daughter which she did.

In 1998 her kidneys took a turn for the worse and her husband was also diagnosed with liver cancer around the same time. She had her first transplant in February 1999 and then her most recent one was from a living donor from her church which she has had some pretty unusual complications with but between her faith and her medical team she thanks God that she is here today to share her story. The complications of her most recent transplant have been identified and treated so that her new kidney is now functioning very well and she is thriving. Janet and David Weinstein are going to the Transplant Games June 10-15 in Cleveland, OH. Janet will be running in the event.

If you are interested in attending please see the Transplant Games website. Flyers for the group are available on your way out and you are encouraged to take some to leave in your doctor’s offices, transplant centers, and dialysis clinics. Norma presented her artwork “Life is a Feather” which she is donating to the Night for Life benefit. Her son Marshall was a member who has since passed and we are very grateful for her continued presence in our group. Don’t forget to wear your blue and green on Donate Life day which is April 15th. Rick Keatley won $36.00 in this month’s 50/50 drawing.

Adjournment

Meeting was adjourned at 12:19 p.m. by Vice President Mariann Jefferson standing in for President Shamie Kelly who was absent today. The next general meeting will be at 11:30 a.m. on May 5, 2016, at The Sanctuary located at 8960 Colonial Center Drive in Ft. Myers.
Minutes submitted by:    Melissa Tuff, Secretary

Minutes – Feb 4, 2016

Organ Transplant Recipients of Southwest Florida
Meeting Minutes February 4, 2016

The meeting was called to order by Shamie Kelly, president at 11:30.  The meeting was held at Lee Memorial Hospital outpatient facility at the Sanctuary.

New visitors:  Barbara Flat was a new visitor.  She received a liver one year ago.  Member updates: Donna Williamson is now back in Indianapolis due to complications.  She is optimistic about her outcome.  Gabe Caplin, who is a liver recipient is hospitalized due to his Leukemia.  Please keep these members in your thoughts and prayers.

Anniversaries: Julio Cordero received his kidney in January 2012, Carolyn Moore received her son’s kidney February 1, 2012 and Jeff Jansen received his liver 14 years ago.

Reports: Secretaries report was approved.

The treasurer reported a balance in our account of $990.91.

Fletcher Foundation now has new board members: Jenniene Moran and Carlene Brennan. The fletcher fund awards $1000.00 grants, twice a year to individuals who are members of the Organ Transplant group, who are in need.

Committees:

Membership: no report

Fundraising: Night For Life: Jenniene and Janet reported that they are receiving donations for the event and need help from the members to get more donations. All are encouraged to participate in the meetings to help with this event.

There will be an awareness day at Edison Mall in April.  We may have a table to have shoppers sign up to be organ donors.  The others participating will be One Blood, Lee Memorial Hospital and Life Link.

Old Business:

The Burger 21 event was successful.  Thank you to B.J. Odom for his commercial promoting this event.

Two new directors for the board are Jeff Jansen and Madelyn Chrone.

Jenniene Moran and Carlene Brennan are the two new members of the Fletcher Foundation.

Paracords sale: Paul explained the advantage for selling the survivor bracelets for raising funds for the group. It was decided that this was not feasible at this time after a vote by the group.

New business

April 23rd event. “Be a Miracle, Become an organ Donor”.  This event involves selling tickets for the Miracles game to benefit our group. Tickets are $9.00. They will be sold online. Instructions will be sent via the blast to help members with ticket sales.  A portion of the sale goes to benefit our group. The game starts at 7:05 p.m. at Hammond Stadium.   There will be a table for members to promote organ donation. Set up begins at 5:30.

Tee shirt sales were discussed.  It is necessary to have 50 shirts ordered to get a decent price.  Name tags were also discussed.

Kidney Walk is March 6th at lakes Park. Volunteers also needed to man tables.

Organ Awareness recruitment event in April is being planned.

There will be a new social worker from the transplant Center who will possibly be our next speaker.

We hope to have members share their stories at future meetings.

The meeting was adjourned at 1:15 p.m.

The next meeting will be held at the Sanctuary on March 4th at 11:30